So many disease-specific organizations exist for the purposes of advocacy and education that they cannot all be listed.
Below are just a few that might be helpful. Each organization might have policy, patient education, advocacy and standards of care information related to their specific disease on their websites.
Keep in mind: One helpful tip for finding good information on the web is to look for ".org" rather than ".com" after the name when searching for specific disease information on the internet. A ".com" may not present bad information, however, by nature, is a commercial enterprise with an interest in selling a product, drug or other service.